I am back from the liver biopsy that wasn't. First off, we had a terrible time
finding outpatient registration. My doctor's office said that the hospital would
call to pre-register me and give me directions at that time. Well, they never did.
So I talked to someone in radiology yesterday to get directions, and that just
ended up getting us more confused. Anyway, we finally stumbled around, found
someone to give us directions and ended up in the right place. A very nice gal
(wearing a pink ribbon) registered me. Then a young man escorted us up to the
Outpatient Treatment Center. We should have left a trail of bread crumbs. We
walked, and walked, and walked.... and I said, boy, am I glad they sent an
escort.... and he said that he likes the long halls - they are job security for
him.... and still we were walking and walking. Just before we got to OTC, he
laughed and said that besides the long hallways, they send him along with people
to make sure they don't bail out on their procedure at the last minute. I told him
that there was no chance of that! I've been pushing for a biopsy since we first
saw this thing in October. Then he bid us farewell and let the nurses in OTC know
we were there.
In OTC, they had me take off my clothes from the waist up and don a fashionable
hospital gown. They were very nice in setting up my IV through my port. My BP and
pulse were great. Rick and I waited in OTC while mom and Rick's brother, Gary,
waited in the waiting room. Finally, my escort to CT arrived and we all went down
another hall. Rick was allowed to come into the CT room with me to meet the
radiologist and nurse. I had a BP cuff and pulse oximeter added to my already
stunning outfit. The radiologist looked at the films of the CT and MRI from last
fall and came out to give his opinion. He said that the lesion is very subtle and
expressed some concern about getting a good biopsy. He said that it is flat like a
pancake, so while its dimensions laterally are fairly large (2 cm) it is really a
difficult lesion to make sure you are getting a sample from. He said if they
couldn't find it on the CT, we would try US. I told him that we had been able to
image it on US in January. He said that if we couldn't get a good angle for the
biopsy on the US, we would do a CT contrast. I explained to him that I am allergic
to the iodine-based contrasts and that I hadn't been pre-medicated. So we hoped we
could find it before resorting to that.
Rick was asked to leave and I got onto the table. I went in and out and in and
out of the CT scanner. Hold your breath. Don't move. In and out. Finally they came
out to tell me that they could not find the lesion at all. An US tech came with her
apparatus and she looked and looked. Then the radiologist came and took over the
US, and he looked and looked. Still no sign of the lesion. So...... I have to
come back another day, after I've been pre-medicated. If they give you the
contrast, they only have a window of about a minute to take the pictures and get
the needle in it. So that will be very a exciting thing. I'm scheduled for March
13th, next Tuesday, at 10:30 am.
So, Rick and mom and Gary and I went out to lunch. When I got home, I got a
call from the cardiologist about Friday's MUGA scan. My ejection fraction is up
to 48%. That is sooooooo exciting! It was 49% before chemo and 40% a month after
chemo. The cardiologist told me back in September that I could not expect it to
improve; I could only hope to hold steady. I didn't believe that. I changed my
diet; I've been working out in the pool; I've been giving my heart to God every
day to do with what he will. I believed it could improve, and it did! I am so
excited!
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posted by Karen Weber Monday, March 05, 2001