Clinical Trials Can Be a First Step, Not a Last Resort
Breast Cancer and Genetic Screening
Accuracy of sentinel node biopsy in predicting nodal status in patients with breast carcinoma
Sutter Home for Hope - the winery is launching a
campaign with bottles adorned with pink ribbons and pink corks. Which is all very nice, other than the fact that
drinking alcohol is one of the risk factors for developing breast cancer.
I was scheduled to have my 6 month follow-up MUGA scan yesterday, but it didn't happen. My job was to show up at
9:30 am. I did my job. That's when things hit the fan. The doctor's office had faxed over the order for the test,
but it was unsigned. The hospital registration department said an unsigned order is against state law (and I would
hope so! they are injecting you with radioactive material!). But the doctor's office said that they've never had
to sign the orders before. And they showed me copies of the orders for my 2 previous MUGA scans as proof - unsigned.
So apparently the hospital was breaking state law in the past by accepting unsigned orders. That doesn't mean the
doctor's office shouldn't have known better anyway. And the hospital should have notified docs that they were
changing their policy. And the hospital, when it received the unsigned order for my test, should have contacted
the doctor then instead of waiting until I was sitting there. In short, everyone was wrong, no matter how strongly
they were protesting otherwise.
You know the thing that really irks me about the whole thing? The people at the hospital were so busy covering
their butts and yelling at the people in the doc's office - and vice versa - that it never dawned on anyone to
apologize to the patient who rescheduled things and drove half an hour to get there on time for the test. Nor did
any of them seem to have any inkling of what it takes for the survivor of a major life-threatening illness to
prepare emotionally for a test like this. I mean, come on! This is not someone coming in for a routine check up,
or someone who is still innocent about their mortality. This is someone who has faced death and is still engaged
in a staring contest with it. Someone who didn't sleep very well the night before the test. Someone who was more
than a little bit stressed about being there at all. A little compassion, in the form of simply saying "I'm so
sorry for your inconvenience" or "I know this is hard for you to put this off" would have gone a long way. The
closest anyone came to that was the gal at reception telling me that the mess was not my fault. Not my fault?!
Well, doh. Of course it was not my fault. What kind of dumb thing was that to say? I left without ever losing my
temper or saying anything angry, but it took a great deal of self-control on my part.
And then when I got home, the guy from the Nuclear Med department calls me to ask why I didn't show up for the
test. Apparently the reception department never notified him that they had sent me home. He was at least
understanding why I wasn't happy about being turned away. He's done MUGAs for cancer survivors before. He knows
the score. He said he was going down to reception to let them have a piece of his mind about it.
In the meantime, the doc's office is supposed to be rescheduling the test. So far, they haven't done so.
posted by Karen Weber Tuesday, July 24, 2001